Tuesday, July 14, 2015

What I See

I've struggled for almost 6 years trying to explain to doctors, family and friends that whatever caused my dizziness, tinnitus, muscle spasms, intolerance to cold and other miscellaneous symptoms also did damage to my vision.

The doctors tell me they can see a nystagmus, that is a problem with the right eye not tracking with the left eye. But they assure me that it's slight and they can only tell when I'm looking up to the right. Dr. Hain has done tests that show how my right eye "dances back and forth" when my head moves too suddenly. I knew that from the beginning and therefore work hard at no sudden movements.

But they don't seem to understand exactly what it is that I am seeing. Especially when I say that the vision in my right eye alone is doubled and can be made worse with movement. Apparently my eyes look like they are working fine when I'm reading for them or looking at those letters on the wall.  And they also tell me that my optical nerves look good and although I have "Acute Disseminated Encephalomyelitis" -- severe brain damage in many parts of my brain -- none of it appears to be in areas that would affect my eyesight. Or almost any of my other symptoms for that matter. And that brain damage doesn't look like MS -- or anything else for that matter.

BUT MY VISION IS NOT FINE!

So I've put together a short video to illustrate how I see things. Here it is. Let me know if you understand. Thanks. Maybe some doctor will understand too and have an idea how it can be fixed.
video

6 comments:

  1. wow! I don't know how you did that, but that was an excellent description of your very strange and obviously irritating vision problems. If your ophthalmologist cannot understand what you are talking about after seeing this, he has a problem.

    However, whether or not they can do anything to ameliorate the situation is another story entirely. I sure hope they can do something to help.

    The way you describe this it is not only irritating, but actually dangerous, the way I see it. Keep us posted as to what your ophthalmologist says!

    ReplyDelete
  2. wow! I don't know how you did that, but that was an excellent description of your very strange and obviously irritating vision problems. If your ophthalmologist cannot understand what you are talking about after seeing this, he has a problem.

    However, whether or not they can do anything to ameliorate the situation is another story entirely. I sure hope they can do something to help.

    The way you describe this it is not only irritating, but actually dangerous, the way I see it. Keep us posted as to what your ophthalmologist says!

    ReplyDelete
  3. I just tried to post comments to different times but yet it says there are no comments. I don't know what else to do.

    ReplyDelete
  4. I just tried to post comments to different times but yet it says there are no comments. I don't know what else to do.

    ReplyDelete